I feel like I should explain why I started this blog.
Well, when I had my nephrostomy put in, I didn't have a clue what it was, how to look after it, what I'd need to do - nothing! So what did I do? The same thing that we all do, I looked online for information.
Well, there is really very little information for people like me about nephrostomies. You'll find quite a lot of information about the procedure of putting it in and that sort of thing, but I wanted to know what it was like. How did it feel? Was it going to leak all over my clothes on the train to work? You know, the REAL information.
There are lots of reasons why people might need them. But there is very little information available online about what they are really like and what to expect.
In my case, I was a fit and healthy 41 year old mother of 2. My hysterectomy operation didn't go to plan and my ureter was blocked during the operation. The nephrostomy allowed the left side of my body to keep draining urine. That was a couple of months ago and I'm currently waiting for further treatment to hopefully unblock my ureter. So, *fingers crossed* my nephrostomy is only temporary.
I started this blog to try and help people like me who weren't expecting to need a nephrostomy. I remember laying in my hospital bed, crying because I had a strange tube sticking out of my back, going into a vital organ of my body. I didn't really understand why, or how long I would have it. It was bloody scary.
I don't want you to feel you're on your own. I hope my blog can answer some of those questions and feel free to comment below if there is something you want to know about that I may be able to help with.
Please note, I'm not a medical person. I have no medical training. I am simply giving you an insight into how I have dealt with things and the journey I have been on for the last couple of months with my nephrostomy.
I hope it helps someone.
Well, when I had my nephrostomy put in, I didn't have a clue what it was, how to look after it, what I'd need to do - nothing! So what did I do? The same thing that we all do, I looked online for information.
Well, there is really very little information for people like me about nephrostomies. You'll find quite a lot of information about the procedure of putting it in and that sort of thing, but I wanted to know what it was like. How did it feel? Was it going to leak all over my clothes on the train to work? You know, the REAL information.
But there is very little information available online about what they are really like and what to expect.The other thing you will realise is that nephrostomies are not that common. I have no idea how many people have them, I am sure it's a heck of a lot more than I realise but no-one seems to be talking about them.
There are lots of reasons why people might need them. But there is very little information available online about what they are really like and what to expect.
In my case, I was a fit and healthy 41 year old mother of 2. My hysterectomy operation didn't go to plan and my ureter was blocked during the operation. The nephrostomy allowed the left side of my body to keep draining urine. That was a couple of months ago and I'm currently waiting for further treatment to hopefully unblock my ureter. So, *fingers crossed* my nephrostomy is only temporary.
I started this blog to try and help people like me who weren't expecting to need a nephrostomy. I remember laying in my hospital bed, crying because I had a strange tube sticking out of my back, going into a vital organ of my body. I didn't really understand why, or how long I would have it. It was bloody scary.
I don't want you to feel you're on your own.Thankfully I had some amazing nurses who were able to answer some of my questions. But once I left that hospital, I was pretty much on my own.
I don't want you to feel you're on your own. I hope my blog can answer some of those questions and feel free to comment below if there is something you want to know about that I may be able to help with.
Please note, I'm not a medical person. I have no medical training. I am simply giving you an insight into how I have dealt with things and the journey I have been on for the last couple of months with my nephrostomy.
I hope it helps someone.
Comments
Post a Comment